THE National Press Foundation (NPF) is inviting applications for its online fellowship on coverage of rare diseases.
Twenty fellows will be selected for the program.
The program will consist of online briefings and question-and-answer sessions from top world experts in rare diseases, diagnostics, targeted testing, and drug development, as well as from leaders of patient advocacy groups and journalists who have been covering the issues.
Journalists around the world can apply for this fellowship which offers reporting grants.
In addition, fellows will receive grants up to US$3,000 to support reporting projects focused on rare diseases anywhere in the world.
The program is slated for October 17, 2022, to October 18, 2022. Fellows will attend a special program, on October 19, 2022, with experts and coaches in narrative journalism.
The organiser says, “The plight of persons living with rare diseases is a critical unmet need of patients in healthcare.
“The statistics are concerning – there are 7000 rare diseases in the world that affect 350 million people.”
Three-quarters of persons living with a rare disease are children and only half of the patients receive an accurate diagnosis.
The deadline for submission of applications is August 16, 2022. Interested persons can apply here.